Thursday, May 31, 2012

WBC count :(

Yesterday my white blood cell count was still at the same place as a week ago.  The doc didn't want me to go another week without treatment (and I DEFINITELY didn't want to go another week without treatment), so they gave me a 75% dose rather than 100%.  In about an hour I go get my shot to stimulate my bone marrow to make more red blood cells, white blood cells and platelets.

Yep - that's a white blood cell hangin' out
in a posse of red blood cells.
Next Tues is my halfway point in my six months of planned chemo.  To celebrate, I get to have a CT scan to check out the status of my junk.  Wait... that doesn't sound right.  Anyway, Tues is my scan and Wed we meet with the doc for results.  And on Friday, my big brother and his family come to town and we get to have FUN!!

More update soon!

Thursday, May 24, 2012

Who peed in my cheerios?

Did you ever hear that phrase when you have a dark look on your face... "Who peed in your cheerios??"

Well, that was the look on my face yesterday when I went from treatment and was DENIED.  Before each treatment they do blood work to make sure you are healthy enough for another round.  I feel fine, but apparently my white blood cell levels  were too low to get treatment.  My treatment will be postponed one week to give the numbers time to recover.  After my treatment next week, they will give me a shot of Neulasta, which helps to rebound everything produced in my blood system by my bone marrow.  Four years ago I received a shot of Neulasta after every treatment.  In fact, for a little entertainment about Jason having to give me the shot four years ago, check out this old post.

So, now my every-other-week treatment has changed to the opposite weeks.  That means that this morning I am rescheduling everything in our world back a week basically, and hoping that next week my cheerios are back to normal.

Friday, May 11, 2012

Thursday, May 10, 2012

Walk with the Lusty Bees - June 23 in STL

A note from my friend, Tara.  I hope you can join us June 23.  Check out the link from Tara for the story behind the team name.  You can't even IMAGINE the costumes we're planning!!  (oh, if only that wouldn't BEE too hot to wear!)

Hello everyone:

It’s been a while since I wrote many of you about Race for the Cure on June 23 and our team in honor of Jill. Thank you for your patience! Our team “Lusty Bees” is now online and you can register/participate by visiting the site:

The link to register can be found at the bottom of the web page “Join Team” and from there it will take you to an online form to fill out.  The deadline for online registrations is 8:00 am on JUNE 4. 

Thanks everyone for your support—even if you can’t join us on race day—you can still participate so let me know if you’re interested but can’t be present that morning. And a HUGE thank you to Steffani for providing the content for our team page!!

Take care,

Updates to the Blog

I spent some time last week making some updates to the blog and wanted to point them out.

Following the blog:  For those of you who want to know how to follow the blog, there is now a box in the top right corner to help you.  Add your email address and you should receive an email every time I post a new blog entry.  Easy Peasy.

New links: Links have been added to the right for some websites I use a lot.  More will be posted.  There will also soon be a section of links to books and cookbooks.

If you have trouble with any of the enhancements, or have ideas for other things I should include, please share!  Thanks.

Wednesday, May 9, 2012

Superhero, Super Day

A note on videos... if you click on "YouTube" under the video screen you can watch the video on YouTube, which gives you a bigger screen.

It's been a super day.  At treatment today we found out that my response to the treatment has been great!  My liver enzymes are all basically back to normal and the doctor just couldn't say enough how stunning my response to the chemo has been.  In fact, my response has been so good that he wants us to have a conversation with another doctor about a possible different type of chemo treatment that is stronger and might give me an even better response.  We have no idea if I'm a candidate for this other treatment but are willing to go talk with the doc.  Even if I'm not a candidate, we are really happy that my doctor is thinking outside the box looking for solutions.

Laughter is always the best medicine, so please enjoy the outtakes below!  As you can tell, we certainly had fun with them.

Big hugs and love to everyone,


Tuesday, May 8, 2012